PHILADELPHIA
PHILADELPHIA
List of support groups/supports for parents whose children have any kind of behavioral challenges, developmental, social and emotional concerns or addictions.
PAFAMILIES
STATEWIDE FAMILY NETWORK
1-800-947-4941
CALL OR EMAIL FOR
CURRENT LIST
SOS INC
SURVIVORS OF SUICIDE
2064 Heather Road
Folcroft Pa 19032
215-545-2242
Sites at Crozer Chester Medical Ctr
Frankfort Hospital
Graduate Hospital
THERE’S A PLACE FOR US
Support group for parents of kids with special needs
Margie Austin
215-991-0301
GRAND CENTRAL, INC, KINSHIP CARE RESOURCE CENTER
Sandra Cross
1211 Chestnut St
Suite 200
Philadelphia Pa 19107
215-557-1554
ABRIENDO CAMINOS A LOS LATINOS CON FAMILIAS EXCEPCIONALES
Support group for Spanish speaking parents, caregivers, family members, friends etc of a person with a developmental disability.
Group will share experiences, information, resources and more
For info,
Ana Pacheco 215-744-5014
Marosol Ramos 215-533-5836
MEETINGS CONDUCTED IN SPANISH.
HUNE
Hispanos Unidos para Ninos Excepcionales
Hispanics United for Exceptional Children
2200 N 2nd St
Phil Pa 19133
215-425-6203
HUNE provides free bilingual English and Spanish training, technical assistance and individual assistance to parents of infants, children, youth with disabilitites and to professionals who work with children.
HOLY TERRORS S.T.A.R.S. SPORTS PROGRAM FOR KIDS WITH SPECIAL NEEDS
Cyndi Hinchey (Director) 215-331-9876
Kim Wilson (Assistant/Secretary) 215-407-3027
BOY SCOUT TROOP FOR KIDS WITH SPECIAL NEEDS
Theresa Gabor
215-632-1334
Meets at
St Anselm Church
12670 Dunks Ferry Rd
Philadelphia, PA 19154-1425
(215) 637-3525
Philadelphia, PA 19154-1425
(215) 637-3525
PARENTS INVOLVED NETWORK (PIN)
Bilingual support group for parents of children with emotional and behavioral challenges.Sponsored by,
Mental Health Association of South Eastern Pennsylvania
Free Library of Philadelphia, Lillian Marrero Branch, 601 West Lehigh St
Phil Pa 19133
215-685-9794 Refreshment/snack provided.
for more information please contact
215-751-1800
Michelle Sanchez x353
Becky Espanol x 214
MEDICAL DAYCARE SUPPORT GROUP
Frankie's World
1011 Poplar Street
Philadelphia, PA 19123
215-763-0151
Frankie's world is a medical daycare for children with medical needs. Frankie's World has a parent support group for families enrolled in the center.
1011 Poplar Street
Philadelphia, PA 19123
215-763-0151
Frankie's world is a medical daycare for children with medical needs. Frankie's World has a parent support group for families enrolled in the center.
PARENTS INVOLVED NETWORK (PIN) MENTAL HEALTH ASSOCIATION OF SOUTHEASTERN PENNSYLVANIA
Information and advocacy for parents and caregivers of children with behavior and emotional disorders
Barbara Altenburger,Program Manager
Becky Espanol Program Coordinator
1211 Chestnut St 11th floor
Philadelphia Pa 19107
215-751-1800 ext 513
1-800-688-4226
MENTAL ILLNESS SUPPORT GROUP monthly group
For family member, friends of people with mental illness
8.14.08 10am-noon at the
Mental Health Assoc
1211 Chestnut St, 12fl
Center City Phil. FOR INFO
215-751-1800 x232 or 233
BORDERLINE PERSONALITY SUPPORT GROUP for parents, partners of people with traits of borderline personality disorder.
8/12/08 7-9pm for more info
215-751-1800 x232 or 233
emannion@mhasp.org held at
Belmont Center
4200 Monument Ave, Room 139
Philadelphia Pa
MENTAL ILLNESS SUPPORT GROUP held monthly for adult siblings and adult childen of people with mental illness , 7/17/08 7-9pm held at
Belmont Center
4200 Monument Ave, Room 138
Philadelphia Pa
FOR MORE INFO
215-751-1800 x232 or 233
PARENTS AND CAREGIVERS SUPPORT GROUP FOR PARENTS/CAREGIVERS OF CHILDREN WITH BRAIN INJURY
Children’s Hospital of Philadelphia
Children’s Seashore House
Room 438
34th & Civic Center Blvd, Phil. Pa 19104
Maureen Sullivan 215-590-7645
2nd Wed of month 7-8:30pm
Format determined month by month, speakers arranged on topics generated by group
BRAIN INJURY SUPPORT GROUP
Magee Rehab Riverfront
1500 South Columbus Blvd
Philadelphia Pa 19147
Janet Hanlon
11am-12pm Thursdays
BRAIN INJURY EMPOWERMENT GROUP
Moss Rehab, Drucker Brain Injury Ctr.
1200 W. Tabor Road, Phil Pa 19141
Roberta Brooks 215-456-9900
2nd Monday of month 6:30-7:30pm
Topical discussions, speakers, 2 social events per year
SPECIAL TEENS AROUND REPRESENTING BRAINS
Group for adolescents 13-22 who have brain injuries, open discussion, speakers, theme nights, social events etc
Children’s Seashore House, CHOP
34th&Civic Center Blvd, Phil 19104
Contact Gayle Chesley
267-426-7388
2nd Wed of month
7pm-8:30pm
TEEN BRAIN INJURY GROUP
Children’s Seashore House, CHOP
34th & Civic Ctr Blvd Phil 19104
Contact Gayle Chesley 267-426-7388
2nd Wed of month
7-8:30pm
STRESS AND FRUSTRATION MANAGEMENT SUPPORT GROUP FOR PARENTS AND CLIENTS OF BRAIN INJURY
Dr. Mady DiPasquale
Drucker Brain Injury Center
7612 Dungan Road
Philadelphia Pa 19149
215-745-5093
FOSTER, ADOPTIVE AND KINSHIP SUPPORT GROUP (FAKS, Inc)
Support Group for Foster, Adoptive and Kinshp Parents and their Family Members for Children with Disabilities and Disorders (Developmental Disabilities, ADHD, Serious Mental Illness), etc."
Jazmin Banks
PO Box 23144
Philadelphia. Pa 19124-9998
215-744-0402
GRANDMA’S KIDS PROGRAM
1601 North Broad St
USB Room 206
Philadelphia Pa 19122
267-688-5839
Sites at: McKinley School
Harrison School
Blaine School
Blankenburg School
SIMCHA
SPECIAL INDIVIDUALS MEETING CHALLENGES WITH HEARTWARMING ACTIVITIES
Rabbi Yair Robinson
Debby Chaiken
101 Richboro Road
Newtown Pa 18940
215-968-3400
SPECIAL PARENTS OF EXCEPTIONAL CHILDREN
Jean McCoubrey
208 East Gravers Lane
Philadelphia Pa 19118
215 248-5930
215-913-9027 cell
PRO-ACT
Drug and alcohol support for parents/loved ones of those abusing
Babette Benham
252 West Swamp Road
Unit 12
Doylestown Pa 18901
1-800-221-6333
GRANDS AS PARENTS
Eileen Brown
2121 North Gratz St
Philadelphia Pa 19121
215-236-5848
BILY
Because I love you
Support group for parents of kids with behavioral problems
Bob and Jane Dambman
6700 Pechin St
Philadelphia Pa 19128
215-483-1023
CHADD MAINLINE
Parents of children with ADD
Susan Becker O’Rourkes
PO Box 1397
Havertown Pa 19083
1-800-233-4050
ADDITION 2/24/10
NORTHEAST PHILLY CHAPTER
PARENT AND ADULT SUPPORT GROUPS
There is a New Adult Support Group as part of the Northeast Philly chapter. Please go to www.chadd.net/292 for all the details. The Northeast Philly parents support group meets on the first Wednesday of every month and the adults will be on the second Wednesday of the month. Additionally, on Wednesday January 13th, 2009 Northeast Philly chapter will host Dr. Ari Tuckman who will speak/present at the adult meeting. He will be discussing his latest book More Attention, Less Deficit Success Strategies for Adults with ADHD. He will be bringing books to purchase (with a portion of the proceeds going to NE CHADD) and will be signing the books as well.
SPECIAL EDUCATION ADVOCATES
Advocates provide specialized knowledge about special education and the laws that provide you and your child benefits, privileges and protections.
Check website for more info!
Carol Hemingway
215-551-5729
Oni McMullen
215-923-3349
Stephen Trott Batipps
215-732-7277
215-875-2319
THE PHILADELPHIA FAMILY COURT PARENT PROJECT
Free classes are offered by the Phila. Family Court Juvenile Probation Dept. by certified staff.
Classes are for parents with strong-willed or out of control children.
Successful in intervening, preventing and identifying destructive adolescent behaviors.
To register/question call 215-686-4111.
This is free for all Phila. Residents.
Learn more about these classes on the website: www.parentproject.com
AMERICAN ANOREXIA AND BULEMIA DISORDER ASSOCIATION
Support group for parents of kids with eating disorders
Joyce Siegel
Rhoda Kreiner
PO Box 1287
Langhorne Pa 19047
215-221-1864
FAMILIES ANONYMOUSSupport group for families/loved ones of someone addicted to drugs or alcohol
Carole
215-333-1288
PARENTS ANONYMOUS
215-351-7060
For parents interested in stopping abuse and effective parenting skills
PROJECT ELIJAH EMPOWERING AUTISM – PEEA
Eric D. Williams Sr. Elijah@peea.org
267-258-8687
William A. Sayre High School
58th & Walnut St. West Philly
DRUG AWARENESS FAMILY SUPPORT GROUP
Group for loved ones/family of those struggling with a drug/alcohol addiction.
Contact- Linda- 215-634-0418
Alberta- 215-739-3225
Theresa- 215-426-8263
Group meets at St. Annes’s Social Hall at Memphis & Tucker Streets on the 2nd floor.
ONLINE DISCUSSION GROUP
Yahoo!Groups:DrugAwarenessSupportGroup
Go to Yahoo for the group information
FATHERHOOD INITIATIVE SUPPORT GROUP
215-351-7060
PARENT INVOLVEMENT SUPPORT GROUP
Denota Watson
215-351-7060
PENNSYLVANIA FAMILY SUPPORT ALLIANCE
Support for parents who have challenges and children who are challenging
Kathy Parker
Monica Ellis
Bartrum Beacon Center
2401 South 67th St
Philadelphia Pa 19142
215-492-6366
215-496-5681
PENNSYLVANIA FAMILY SUPPORT ALLIANCE
Michelle Forte
June Shever
Lola DeCarlo-Coles
Catholic Social Services
6214 Grace Ave
Philadelphia Pa 19142
215-724-8550
TOURETTE SUPPORT GROUP
Sidney Newman
1932 Nester St
Philadelphia Pa 19115
215-673-3261
TOURETTE SUPPORT GROUP
2ND Monday every other month 7pm
Evangelical Manor,8401 Roosevelt Blvd.
Group is for adults and kids with TS & their families
Wayne Siegel Merle Siegel 215-464-9341
NAMI NORTH PHILADELPHIA
Support for parents/loved ones of those affected by mental health problems
Delores V Jackson
1421 Lenox Ave
Philadelphia Pa 19140
215-228-7214
FAITH- FAMILIES ALLTOGETHER IN THEIR HOPES ADOPTION SUPPORT GROUP
Group works to meet the challenges of raising children of biracial, transcultural and special needs adoption. Families meet monthly. For more information call or email 215-949-3893, faithfamilies@verizon.net.
Helen Smith
Bucks County Human Relations Council
GREATER PHILADELPHIA AUTISM SOCIETY OF AMERICA
Support group
PO Box 304
Lafayette Hill Pa 19444
610-358-5256
asaphilly@yahoogroups.com is an online place to find out local news such as conferences, legislative issues, Ed laws etc
Now there is TALKASAPhilly@yahoogroup.com to provide a warm, welcoming place for ASA Philly families to have conversations. This will be a virtual support group. You can join by clicking on the link above or by going through you Yahoo account. For more info
215-884-0844
GROUP FOR FAMILIES AND CAREGIVERS OF ADULTS ON THE SPECTRUM
This Greater Philadelphia Chapter of the Autism Society of America listserv is RESTRICTED to parents, relatives, caregivers and spouses of adolescents, age 17+ and adults with Autism Spectrum Disorder who reside in Southeast Pa, Bucks, Chester, Delaware, Montgomery & Philadelphia counties.
Purpose is to share info and provide support for families who are concerned about the daily needs and future of adults with ASD. The need to implement life span adult services, including a waiver, employment and housing will be discussed. This group will not address the Transition to Adulthood phase of Education.
ASCEND, the Asperger Syndrome Alliance for Greater Philadelphia
Deirdre Wright
PO Box 531
Ardmore Pa 19003
610-449-6776
Chapter meetings in Chester, Delaware, Montgomery and Philadelphia counties
dcwascend@me.com
www.ascendgroup.org
Deirdre Wright
PO Box 531
Ardmore Pa 19003
610-449-6776
Chapter meetings in Chester, Delaware, Montgomery and Philadelphia counties
dcwascend@me.com
www.ascendgroup.org
SPEC
SUPPORT GROUP FOR FAMILIES WITH CHILDREN WITH SPECIAL NEEDS OF ALL AGES
Meets monthly Saturdays at the Chestnut Hill Library
Contact- Jean McCoubry 215-248-5930
ONLINE SUPPORT GROUP FOR AUTISM
ARC
2350 West Westmoreland St
Philadelphia Pa 19140
215-229-4550
ELWYN PRESCHOOL SUPPORT GROUP
Philadelphia Elwyn Preschool Early Intervention has a support group once a month for families and people working with children with Autism.
Contact Karen Krivit at 215-222-7344 or at krivitk@elwyn.org
RIGHT TO EDUCATION TASK FORCE #26
This group meets to address issues regarding students receiving special education services. Members include parents, school officials and community reps. Any parent welcome. Newsletter available also.
Cecelia Thomopson
Sharon Duckett
Joanne Eggleston
June Bey
215-400-5151 IU
BUCKS/PHILADELPHIA RDI PARENT SUPPORT GROUP
Meets at the Bucks County IU
For group info contact
Amy Accardo at
PA MENTORS
SPECIAL NEEDS SUPPORT GROUP
Support group for autism, etc.
Dawn Vitello-Mangan
Pa Mentors
10601 Decatur Road
Suite 400
Philadelphia Pa 19154
215-612-8200
SIBLING GROUPS
6-12 YR- Lenore 215-590-7443
7-13 YR- Jody 215-248-7605
ASCEND MEETINGS OF THE CHAPTER FOR FAMILIES OF ADULTS WITH AUTISM SPECTRUM
Diane Pringle-215-386-3257
HEARTS FOR AUTISM
Art program for autism spectrum children and a networking/support opportunity for parents/caregivers at the same time
Norcom Community Center
10980 Norcom Road
267-231-7585
Working with persons on the Autistic Spectrum, HeARTs for Autism ®encourages creative _expression. As the person works with an art project, there are opportunities for them to integrate Sensory needs, interact socially with our volunteers, and express themselves in ways that transcend the limits they might otherwise experience daily with their autism. Many times art can "say" something that the person otherwise could not "tell" us.The sibling program uses the creative time to provide peer support for the sisters and brothers, while allowing them to explore what they might be thinking or feeling. The parenting program provides much needed nurturing. Creative _expression is used with the parents along with stress reduction techniques, and they have chance to network and support one another. HeARTs uses the artwork to then educate others about the Autism Spectrum Disorder and to advocate for improved, integrated services for ASD persons and families
AUTISM SHARING AND PARENTING
Families of all ages of children with Autism meet twice a month
Northern Home for Children
5301 Ridge Avenue
Philadelphia Pa 19128
Not far from 76 & Lincoln Drive in Roxborough, accessible via Septa Route 9,65
Close to Wissahickon Transfer Center
Contact Renee Henderson at Nasya06@msn.com or
215-413-7106
PARENTS EXCHANGE
102 East Mermaid Lane
Philadelphia Pa 19118
610-962-0337
Info, referral, advocacy service for parents/caregivers of children w/disabilities and professionals who work w/our families
PAC
PARENTS OF AUTISTIC CHILDREN
4th Wed of every month
West Philadelphia
Huey School, childcare available
For more info
Roberta Belamy
215-472-2764
PICC- PHILADELPHIA INTERACENCY COORDINATING COUNCIL
A collaboration of families, early intervention providers, and early childhood community agencies.
215-731-2464
FAMILIES FIRST- SOUTH PHILA
Learn about early intervention system,meet other families like yours,learn about IEP and IFSP etc
For more info call
Mary Mikus at 215-204-1772
Philadelphia Interagency Coordinating Council
THE PARENT’S SUPPORT GROUP for parents who have children who have been victimized
Women Organized Against Rape
1233 Locust Street, Suite 202
Philadellphia Pa 19107
Business- 215-985-3315
Hotlline- 215-985-3333
THE TEEN SUPPORT GROUP for teens who have been victimized
See above contact information
THE GIRL’S SUPPORT GROUP for girls 10-12 years old who have been victimized.
See above contact information.
PLEASE CALL IF INTERESTED IN ANY OTHER GROUPS AND THEY WILL TRY TO FIND / OR ESTABLISH A GROUP AS NEEDED.
SOUTH/EAST CENTRAL PHIL PARENTS/CAREGIVERS UNITED SUPPORT GROUP
Support for families with children and adults with special needs and /or individuals with disabilities themselves.
Contact – Lynn Youngman
215-928-0765
WEST & SOUTHWEST PARENTS TOGETHER SUPPORT GROUP
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contact-Almeata Sampson
215-473-8744
NORTHWEST-FAMILY SUPPORT GROUP
GERMANTOWN, MT. AIRY, CHESTNUT HILL
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contacts- Verna Edwards 215-248-4415
Sandra Champion-215-848-3624
ROXBOROUGH PARENT SUPPORT GROUP
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contact- Carol Costello 215-487-1240
SOUTH PHILA WEST SUPPORT GROIP
SOUTH PHILADELPHIA, WEST
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contact-Mary Curcio 215-462-3477
NORTHEAST SUPPORT GROUP
LOWER NORTHEAST
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Barbara or Sharon call
215-923-3349
FAR NORTHEAST SUPPORT GROUP
GREATER NORTHEAST
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contact- Coleen Rispo
215-624-5869
J.F.K. SUPPORT GROUP
NORTH CENTRAL PHILADELPHIA
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contact- Shanon Hill 215-462-5536
CONSORTIUM SUPPORT GROUP
WEST PHILADELPHIA
Support for families with children and adults with special needs and /or individuals with disabilities themselves
Contacts- LaVerne Bullock 215-877-2589
Leslie Thompson 215-474-9345
KENSINGTON SUPPORT GROUP IKENSINGTON
Call for info Barbara Nattile ext 114
Sharon Harper-Young ext 132
Vision for Equality, Inc
The Cast Iron Building
718 Arch Street, 6N
Philadelphia, Pa 19106
NORRISTOWN AUTISM SUPPORT GROUP
Meets at Variety, the Children’s Charity monthly, Speakers, childcare available.
For info, Cindy Sharma cjmsharma@comcast.net or Gail Stein at gailstein@varietyphila.org
610-584-4366 x1044
WEST PHILA P.A.C.S.
AUTISM SUPPORT GROUP
WE MEET EVERY 4TH WEDNESDAY OF THE MONTH.
Light dinner served
Childcare on premises & Social play
LOCATION: Huey Elementary School 52nd & Pine St.
DATE: April 23rd 2009
TIME: 5:00pm TO 7:00 pm
Light dinner served
Childcare on premises & Social play
LOCATION: Huey Elementary School 52nd & Pine St.
DATE: April 23rd 2009
TIME: 5:00pm TO 7:00 pm
PRESIDENT & CEO
ROBERTA BELLAMY
215-472-2764/267-231-4120
VICE PRESIDENT
SHARON DUCKETT
215-844-3916
ROBERTA BELLAMY
215-472-2764/267-231-4120
VICE PRESIDENT
SHARON DUCKETT
215-844-3916
FAIRMOUNT EARLY INTERVENTION PARENT SUPPORT GROUP
REACH ONE~TEACH ONE
Family Support Services, Inc
2000 Hamilton St
Phil, Pa 19130
For more information call
Damina 215-383-3171 ext 18
PA COUNCIL FOR EXCEPTIONAL CHILDREN
The principal purpose of the Assoc shall be to advance the education and welfare of children and youth with exceptionalities.
Contact:
Dreamalee Brotz
Plymouth-Whitemarsh HS
201 E. Germantown Pike
Plymouth Meeting Pa 19462
610-825-1500 Ext 2014
ABC EDUCATION ADVOCACY
Step-by-Step Parent Advocacy and Resources for families of children with special needs in Pa public Schools
Contact is Pam Cook
412-851-0252
AUTISM SUPPORT NETWORK
PO Box 321, Sellersville Pa 18960
215-453-9070
UCP SIBLING GROUP
Chestnut Hill
Contact Jodi Miscannon
215-248-7605
Group is free.
CHOP SIBSHOPS
Contact Lenore Stern
215-590-7443
SIBCLUB AT ELWYN
Contact Marissa Tabak
215-254-2087
Group is free.
NORRISTOWN EDUCATION & ADVOCACY FOR CHILDREN W/DIFFERING ABILITIES (NEACDA)
PO Box 262
Fairview Pa 19409
Parent education group for parents of children w/differing abilities(all disabilities) in Norristown and surrounding area. Meetings first Friday of month Sept-May from 7-8:30pm at First Baptist Church, 445 Burnside Ave, Norristown Pa
484-213-2703 Jill or Camille
UPS & DOWNS & ALL AROUND
Ups & Downs & All Around is for families and friends of individuals with Down Syndrome in the Philly area.
Jennifer Bonawitz
215-990-8730
Theresa Gabor
215-632-1334
Borderline Personality Disorder Psychoeducational Support Group for Parents/Caregivers
What: this is a group where parents/caregivers who have a loved one dealing with traits of borderline personality disorder can come for support and education. It is co-facilitated by two women, one a DBT trained therapist and one a woman in recovery from the disorder.
When: second Tuesday of each month
7:00 pm to 9:00 pm
Where: Belmont Center
4200 Monument Road
Philadelphia, PA
Cost: FREE
Phone registration is preferred.
Contact: Talya Lewis at 267.357.5565 or Edie Mannion at 215.751.1800 ext. 233
MOMSTELL
Support/education/advocacy for parents of children involved with drugs
PO Box 450 Mechanicsburg, Pa 17055
717-730-2020
Sharon Smith
B.I.L.Y.
BECAUSE I LOVE YOU
Elaine Shannon
215-576-5216
VISION FOR EQUALITY INC
The Cast Iron Building
718 Arch St
6th floor North
Philadelphia Pa 19106
215-923-3349
To assist people with disabilities and their families access supports and services
PRADER-WILLI SYNDROME ASSOCIATION OF PENNSYLVANIA
Debbie Fabio
104 Persimmon Place
Cranberry Township Pa 16066
724-779-4415
KIDS TOGETHER INC
PO Box 45
Quakertown Pa 18951
Volunteer non-profit provides info on inclusive communities, includes education/advocate listserve, email newsletter and website
NEW PHONE 2/4
THE SPECIAL KIDS NETWORK
Helps parents find resources for their special needs children and provide technical assistance to help groups develop, expand and maintain programs and support systems that serve children with special needs
1-877-986-4550
WEBSITE
PARENT TO PARENT
Linking familes of children or adults with disabilities or special needs.
Network created by families for families of children and adults with special needs. We connect families in similar situations with one another so that they may share experiences, offer practical information and/or support.
1-888-727-2706
Parent to Parent of PA
1-888-727-2706 will connect you with your nearest regional office.
SE Region
Philadelphia, Delaware, Chester, Lancaster, Montgomery, Berks, Bucks, Schuylkill
Regional Coordinators: Cara Forrest
Office: Lancaster-Lebanon IU 13, 1110 Enterprise Road, Ste A, East Petersburg, PA 17520
Office Ph: 717-606-1298
Fax: 717-606-1445
Email: seregion@parenttoparent.org
NE Region
Lehigh, Northampton, Carbon, Monroe, Pike, Luzerne, Lackawanna, Wyoming, Wayne, Susquehanna
Regional Coordinator: Jody L. Miller
Office: Community Relations Department, Wayne Memorial Hospital, 601 Park St, Honesdale, PA 18431
Office Ph: 570-251-3208
Fax: 570-253-8993
Email: neregion@parenttoparent.org
SC Region
York, Adams, Franklin, Fulton, Bedford, Lebanon, Dauphin, Cumberland, Perry, Huntingdon, Blair, Juniata, Mifflin
Regional Coordinator: Carmen Krawczak
Office: N/A
Office Ph: 717-762-1711
Email: ckrawczak@parenttoparent.org
NC Region
Bradford, Sullivan, Columbia, Montour, Northumberland, Snyder, Union, Centre, Lycoming, Clinton, Tioga, Potter
Regional Coordinator: Melisa Hunter
Office: 2401 Reach Road, Ste 206. Williamsport PA 17701
Office Ph: 570-321-8585
Office Fax: 570-323-1738
Email: ncregion@parenttoparent.org
SW Region
Somerset, Fayette, Greene, Washington, Westmoreland, Cambria, Indiana, Allegheny, Armstrong, Butler, Beaver
Regional Coordinators: Rachel Olbeter, Nicole Zilli
Office: N/A
Office Ph: Rachel-724-420-5035, Nicole-724-836-4409
Email: rolbeter@parenttoparent.org (Rachel), swregion@parenttoparent.org (Nicole)
NW Region
Clearfield, Jefferson, Clarion, Venango, Lawrence, Mercer, Forest, Elk, Cameron, McKean, Warren, Crawford, Erie
Region Coordinator: Lisa Kray
Office: Forest/Warren County Human Services, 623 Elm Street, PO Box 276, Tionesta, PA 16353
Office Ph: 814-755-7610
Office Fax: 814-755-7617
Email: nwregion@parenttoparent.org
PENNSYLVANIA EDUCATION FOR ALL COALITION (PEAC)
Diane Perry, President
PO Box 263
Norwood, Pa 19074
610-522-0698
Chapter meetings, on-line community, Parent Consultant Network
THE CENTER FOR AUTISM RESEARCH
3535 Market Street
Suite 860
Philadelphia, PA 19104
1-866-570-6524
autism@email.chop.edu
http://www.research.chop.edu/car
The Center for Autism Research (CAR) is a collaborative effort between
The Children’s Hospital of Philadelphia and the University of
Pennsylvania. CAR’s goals are to identify the causes of autism
spectrum disorders (ASD) and develop effective treatments. CAR conducts
research studies for infants at risk for being diagnosed with ASD (due
to having a sibling already diagnosed) as well as toddlers, school-aged
children, and adults. Families receive comprehensive assessment reports
and are paid for their time and travel costs.
3535 Market Street
Suite 860
Philadelphia, PA 19104
1-866-570-6524
autism@email.chop.edu
http://www.research.chop.edu/car
The Center for Autism Research (CAR) is a collaborative effort between
The Children’s Hospital of Philadelphia and the University of
Pennsylvania. CAR’s goals are to identify the causes of autism
spectrum disorders (ASD) and develop effective treatments. CAR conducts
research studies for infants at risk for being diagnosed with ASD (due
to having a sibling already diagnosed) as well as toddlers, school-aged
children, and adults. Families receive comprehensive assessment reports
and are paid for their time and travel costs.
WIC
WOMEN, INFANTS AND CHILDREN NUTRITION PROGRAM
Provides nutrition education, healthy foods, breastfeeding support and referrals to health and social service agencies.
Orgs. PLEASE NOTE; A CHILD WITH AN ACCESS CARD ( MEDICAL ASSISTANCE ) IS INCOME ELIGIBLE FOR WIC BENEFITS HOWEVER ALL PARTICIPANTS ARE REQUIRED TO PROVIDE THEIR HOUSEHOLD INCOME, REGARDLESS IF THEY HAVE MEDICAL ASSISTANCE OR NOT.
1-800-942-9467
JOEY ONLINE SUPPORT GROUP
Just Open Everybody’s Eyes
Support for parents who have children with behavioral issues
AUTISMLINK
Support, information etc
Online support groups and discussion boards
376 Wagon Wheel Trail
Wexford Pa 15090
412-377-8778
PENNSYLVANIA HEALTH LAW PROJECT
Provides free legal services and advocacy to Pennsylvanians having trouble accessing publicly funded health care coverage or service.
CALL- 1-800-274-3258
1-866-236-6310 TTY
EMAIL - staff@phlp.org
ABOARD
Support for parents of children with autism/autism spectrum, website etc
Howard Carpenter
35 Wilson St
Suite 100
Pittsburgh Pa 15223
1-800-827-9385
GOVERNOR’S COMMISSION FOR CHILDREN AND FAMILIES
List of Health and Human Services
List of Advocacy Resources
Parent Guides
A website with information for parents and families.
MENTAL HEALTH ASSOCIATION IN PENNSYLVANIA
MHAPA works on behalf of mental health through advocacy, education and public policy.
Wendy Luckenbill, Family/Child Policy Coordinator
1-800-692-7443
NEW INFO 2/4
PA TOURETTE SYNDROME ALLIANCE, INC
1-800-990-3300
717-337-1134
Provide Information and Support for those touched by Tourette Syndrome in the state of PA.
Provide Consultants to assist parents and schools with educational plans.
Advocates will do IEP for any child diagnosed with tourettes in any county in Pa
EDUCATION LAW CENTER
Non-profit legal advocacy and educational organization dedicated to ensuring that all of Pennsylvania’s children have access to a quality public education
PHILADELPHIA CONTACTS
215-238-6970
WEBSITE- www.elc-pa.org
PARENT EDUCATION NETWORK
Pennsylvania’s statewide Parent Training and Information Center supports parents of children with special needs and includes information and links to Federal Special Education, National Disability Issues and Resources, Special Education Legal Links, Transportation and Travel.
2107 Industrial Highway
York Pa 17402
717-600-0100
1-800-522-5827
TRANSITION MAP is an online hub of information and resources for transitioning youth ages 14-21, with developmental disabilities who are graduating from special education and entering adult life in the community
Transition Consultant
Jennifer Graham
215-641-1200
PENNSYLVANIA SCHOOL-AGE CHILD CARE ALLIANCE- PENN SACCA
Group is committed to the expansion of high quality school-age care and after-school programs for children and youth. Membership is dedicated to the support of school-age professionals ands the development of quality school-age programs through advocacy and education.
Carolyn Hawk- 570-323-7134
Joyce Lang- 610-332-6541
FETAL ALCOHOL SPECTRUM DISORDER CENTER FOR EXCELLENCE
Website provides info on FASD.
FASD is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These may include physical , mental, behavioral, and /or learning disabilities with possible lifelong implications.
PENNSYLVANIA HUMAN RIGHTS COMMISSION
Mission is to administer and enforce the PHRAct and the PFEOA of Pa for the identification and elimination of discrimination and providing of equal opportunity for all persons.
PITTSBURGH OFFICE
412-565-5395
HARRISBURG OFFICE
717-787-9784
PHILADELPHIA OFFICE
215-560-2496
PENNSYLVANIA CLIENT ASSISTANCE PROGRAM
CAP
Advocacy program helps people who are seeking services from the OVR, Blindness, Visual Services, and Centers for Independent Living and other programs funded under federal law.
Provides you with info and advice about rehab programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehab programs,
There is no charge.
PHILADELPHIA OFFICE
215-557-7112
1-888-745-CDLP
HARRISBURG OFFICE
717-364-1733
STARFISH ADVOCACY ASSOCIATION
This is an Internet community for families of children with neurological disorders such as ADHD, bipolar disorder, Asperger’s, PDD, SID, learning disabilities, OCD, Tourette syndrome, etc. Services include forum boards, interactive chat room, moderated chats, informational resources, online classes in educational advocacy, education consultations.
216-283-2377
Starfish Advocacy Assoc
3341 Warrensville Center Road
Suite 203
Shaker Heights, Ohio 44122
ONLINE CHAT SUPPORT GROUP
Group is for parents who are raising children with special needs.
TEENCENTRAL.NET
TeenCentral.Net is a prevention and intervention resource for teens and is dedicated to improving the lives of all youth by providing emotional support and appropriate references in a safe Web environment where identity is protected and anonymity is respected.
ACCESS DOCTORS
Gives you the tools you need to create an accessible home or public building.
JOB ACCOMMODATION NETWORK
JAN helps you hire,retain,promote qualified employees/applicants with disabilities, provide accommodationoptions,etc
OFFICE OF VOCATIONAL REHABILITATION
OVR provides services to eligible persons with disabilities with the goal of getting or keeping competitive employment. You will be eligible for OVR services if: You have a disability that is physical, mental, or emotional impairment which results in a substantial impediment to employment, and you can benefit in terms of an employment outcome from services provided, and ,
Vocational Rehabilitation services are required for you to prepare for, enter, engage in or retain gainful employment. A Vocational Rehabilitation Counselor will determine eligibility.
OVR provides a wide range of services to eligible applicants. The individual being served and the vocational rehabilitation counselor develop an Individualized Employment Plan jointly. The services you receive will be arranged to meet your individual needs. Not everyone will need every service. OVR services include: diagnostic services, vocational evaluation, counseling, training, restoration services, placement assistance, assistive technology, and support services. There is no change for diagnostic services, counseling and job placement. However, a customer maybe required sharing the cost of other services after a financial needs assessment is completed.
Additional information, including local OVR office locations can be found on www.dli.state.pa.us, click on disability services. Also find OVR offices across the state.
215-560-1900
1-800-442-6381
DISABILITY RIGHTS NETWORK
Disability Rights Network of Pennsylvania (DRN) is a statewide, non–profit corporation designated as the federally–mandated organization to advance and protect the civil rights of all adults and children with disabilities. DRN works with people with disabilities and their families to ensure their rights to live in their communities with the services they need, to receive a full and inclusive education, to live free of discrimination, abuse and neglect, and to have control and self–determination over their services.
General information /questions can be emailed to intake@drnpa.org where intake workers who are advocates and attorneys.
Harrisburg Office
1414 N. Cameron St., Suite C
Harrisburg, PA 17103
1-800-692-7443 [Voice]
1-877-375-7139 [TDD]
(717) 236-8110 [Voice]
(717) 346-0293 [TDD]
(717) 236-0192 [Fax]
(717) 236-0192 [Fax]
Philadelphia Office
The Philadelphia Building
1315 Walnut St., Suite 400
Philadelphia, PA 19107–4798
(215) 238-8070 (Voice)
(215) 789-2498 (TDD)
(215) 772-3126 (Fax)
Pittsburgh Office
429 4th Avenue, Suite 1901
Pittsburgh, PA 15219-1505
(412) 391-5225 [Voice]
(412) 467-8940 [TDD]
(412) 391-4496 [Fax]
drnpa-pgh@drnpa.org [Email]
Wexford Office
8500 Brooktree Road
Suite 100
Wexford, PA 15090
800-276-0928 [Voice]
724-934-1344 [Fax
BRAIN INJURY ASSOC OF PA
2400 Park Drive
Harrisburg Pa 17110
717-657-3601
866-635-7097
ACQUIRED BRAIN INURY NETWORK OF PA
Barbara A. Dively, President
Acquired Brain Injury Network of Pennsylvania, Inc.
Phone: 215-699-2139 Email: info@abin-pa.org
Web: www.abin-pa.org - brochures, resources
E-News: www.groups.yahoo.com/group/abin-pa
ATTACHMENT DISORDERATTACh, the Association for Treatment and Training in the Attachment of Children, is an international coalition of professionals and families dedicated to helping those with attachment difficulties by sharing our knowledge, talents and resources.
MENTORS FOR SELF DETERMINATION
Group of self advocates, family members and caregivers whose mission is to provide current and accurate information to people regarding the MR system in Pa. We offer statewide mentoring so people have a better understanding of the system, promote self determination by sharing life erperiences and networking with others. This is done in one session or group session called Family Connections.
Debbie Leasure
814.547.1577
dleasure@mentors4sd.org
www.mentors4sd.org
dleasure@mentors4sd.org
www.mentors4sd.org
CAFÉ MOM
Online groups for parents and children who have many different special needs
ELKS HOME NURSE PROGRAM
Patricia O’Connor Director
814-781-7860 pato@ncentral.com
Margie Wood Asst Director
724-225-1395 mwood15301@comcast.net
SELECTIVE MUTISM SITES
Several sites below with info on selective mutism.
PHILADELPHIA LEARNING CENTER
Masonic Learning Centers for Children, Inc Center for children with dyslexic/learning challenges.
1700 Tomlinson Road
Philadelphia, Pa 19116
Kathleen Carlsen, Director
215-673-1972
YOUTH OUTREACH UNION
Meets at the Beehive
1327 East Carson St
Pittsburgh Pa 15203
Contact Mike Reber
YOU is a support and advocacy network of young adults for young adults. It’s members are either involved in a child serving system or they were. This support is peer driven and the group works to meet youth where they are to solve problems and deal wit issues that are important to them.
Website: www.youthoutreachunion.com
Mail address:
Youth Outreach Union
PO Box 97771
Pittsburgh Pa 15227
PENNSYLVANIA PARENTS OF BLIND CHILDREN
Supports parents of children with low vision, visual impairment and blilndness throughout Pa.
Contact Carlton Walker, President
213 North First St
McConnellsburg Pa 17233
717-485-3383
717-658-9894 c
GENERATIONS UNITED SENIORS 4 KIDS
Civic engagement initiative that demonstrates the important role older adults can play in support of issues directly benefitting children and youth. We help adults age 50+create statewide networks of community leaders and grassroots volunteers that raise visibility of older adults in support of high-quality early care and education.
Anne Tria Wise
Intergenerational Engagement Manager
Generations United
1331 H St. NW Suite 900
Washington DC 20005
202-289-3979
PA OFFICE FOR THE DEAF & HARD OF HEARING
PA Office for the Deaf and Hard of Hearing phone: 717-783-4912 or 1-800-233-3008 e-mail ra-li-ovr-odhh@state.pa.us
THE PA PARTNERSHIP FOR THE BLIND
The PA Partnership for the Blind contact Gordon Boe at 215-699-6535 or g.boe@comcast.net
PA SOCIETY FOR THE ADVANCEMENT OF THE DEAF
Pa Society for the Advancement of the Deaf www.psadweb.org
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ESPECIALLY FOR PARENTS
Especially for Parents is an online network and forum where parents of children and youth with special health care needs can share knowledge and offer support. Members are able to start a discussion, share tips, tricks and shortcuts, offer support to others, write a blog, create a group for parents with similar interests or situations, create a virtual meeting spot for a local community group, invite friends to become community members, and promote events. Visit us by going to www.pamedicalhome.org and clicking on the “Parents” button!
MARCH OF DIMES
1019 West 9th Ave
King of Prussia, Pa 19406
610-945-6050
Fax 610-945-6060
SPINA BIFIDA ASSOCIATION
2950 Potshop Road
PO Box 859
Worcester, Pa 19490
800-223-0222
610-584-5530
Fax 215-412-9396
CRC OF PHILADELPHIA
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Bill Clemens
President
8049 Pine Road
Suite C11
Philadelphia Pa 19111
215-745-0594
CRC OF PITTSBURGH
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Michael Nieland M.D.
President
1400 Inverness Avenue
Pittsburgh Pa 15217
412-621-0222
DISPUTE RESOLUTION, OFFICE FOR & SPECIAL ED CONSULTLINE
6340 Flank Drive, Suite 600
Harrisburg Pa 17112
800-992-4334 or 717-541-4960
Special ed communication & conflict resolution. Call for help with school, IEP conflicts. Manual available.
This Manual is under revision in light of regulatory changes. For inquiries regarding parent rights and procedural safeguards, please contact the Special Education ConsultLine at 1-800-879-2301. For questions regarding due process, please contact Lori Shafer, Case Manager, at 1-800-222-3353, Ext. 3319. For questions regarding Mediation, please contact Judy Shanabrough, Case Manager, at 1-800-222-3353, Ext. 3301.
CONSULTINE- 1-800-879-2301
ADDITION 2/4
NAR-ANON FAMILY GROUP HEADQUARTERS INC. (WSO)
22527 CRENSHAW BOULEVARD, SUITE 200B
TORRANCE, CALIFORNIA 90505
TOLL FREE: 1 800 477 6291
PHONE: (310) 534-8188
22527 CRENSHAW BOULEVARD, SUITE 200B
TORRANCE, CALIFORNIA 90505
TOLL FREE: 1 800 477 6291
PHONE: (310) 534-8188
FAX: (310) 534-8688
E-MAIL: naranonwso@gmail.com
E-MAIL: naranonwso@gmail.com
On-Line Forum: www.naranon.com/forum
ACTIVE MINDS SUPPORT AT COLLEGE
Active Minds is only org. working to utilize the student voice regarding mental health.By developing and supporting chapters of a student-run mh health awareness, education & advocacy group on camput, org works to provide info and resources etc. They encourage students to seek help asap and serve as liason between students and the mh community.
· Bryn Mawr College (Bryn Mawr, PA)
· Bucknell University (Lewisburg, PA)
· Cabrini College (Radnor, PA)
· Dickinson College (Carlisle, PA)
· Drexel University (Philadelphia, PA)
· Gettysburg College (Gettysburg, PA)
· Immaculata University (Immaculata, PA)
· Indiana University of Pennsylvania (Indiana, PA)
· Juniata College (Huntingdon, PA)
· Lafayette College (Easton, PA)
· Mercyhurst College (Erie, PA)
· Miscericordia University (Dallas, PA)
· Montgomery County Community College (Blue Bell, PA)
· Moravian College (Bethlehem, PA)
· Muhlenberg College (Allentown, PA)
· Philadelphia University (Philadelphia, PA)
· University of Pennsylvania (Philadelphia, PA) (founding chapter)
· University of Pittsburgh (Pittsburgh, PA)
· University of Pittsburgh at Bradford (Bradford, PA)
· Ursinus College (Collegeville, PA)
· West Chester University (West Chester, PA)
· Amy Tannenbaum, Chapters Coordinator: amy@activeminds.org (eastern US)
· General Information: info@activeminds.org
DIVORCE CARE FOR KIDS SUPPORT GROUPS
DC4K is a special group to help your children heal from the pain caused by a separation or divorce. DC4K provides your children with a safe and neutral place to recognize and learn to share their feelings.
For 13 weeks your children become involved in a fun, caring group at a church near you. The weekly session topics help your children learn that God’s love strengthens them and helps them turn their sadness to hope and their anger to joy.Each session is filled with motivating and exciting activities. Games, crafts, role playing, discussion times, journaling and activity books help your children process the divorce and move forward in their lives. The music CDs, snacks, read aloud stories, exercises and Bible verses teach your children to relax and rest secure in God’s love. The Kids Like Me and Stories from the Bible video dramas present stories of children just like your children, who are experiencing divorce-related problems and have found help and encouragement.
DC4K is a powerful ministry for kids 5–12 years of age.
ADDITION 2/4
AMERICAN FOUNDATION FOR SUICIDE PREVENTION
AFSP-Pittsburgh
AFSP-Pittsburgh
AFSP-Greater Philadelphia
Pat Gainey, Philadelphia Regional Director
3535 Market Street, Suite 4047
Philadelphia, PA 19104
(215) 746-7256
fax: (215) 746-7307
pgainey@afsp.org
Pat Gainey, Philadelphia Regional Director
3535 Market Street, Suite 4047
Philadelphia, PA 19104
(215) 746-7256
fax: (215) 746-7307
pgainey@afsp.org
PLEASE SEND INFO ON ANY OTHER SUPPORT GROUPS FOR PARENTS OF CHILDREN WITH BEHAVIORAL ISSUES, LEARNING, EMOTIONAL, AUTISTIC, DRUG, ALCOHOL, MENTAL HEALTH, MENTAL RETARDATION ETC
1-800-947-4941
Thank You.
Please note we are also now listing groups for parents who have children with physical challenges as well.