JEFFERSON
JEFFERSON
Support groups/support for parents whose children have any kind of behavioral challenges, developmental, social or emotional concerns or addictions
PA FAMILIES INC
STATEWIDE FAMILY NETWORK
1-800-947-4941
CALL OR EMAIL FOR CURRENT LIST
NEW CONTACT 1/21
COFAC COLLABORATIVE BOARD
Brian Mowery
c/o Brookville Jefferson CYS
155 Main Street
Brookville Pa 15825
814-849-3696
NORTHWESTERN AUTISM SUPPORT GROUP
Becky Lewis
Northwestern Human Services
Highpointe Center Branch Office
25 East Park Ave Suite 8
Dubois Pa 15801
814-371-3763 x23
PENNSYLVANIA FAMILY SUPPORT ALLIANCE
Parent support and education group
Susan McLaughlin
Community Action Inc
105 Grace Way
Punxsutawney Pa 15767
814-938-3302
ADDITION 1/20
NARANON
MONDAY - "PIONEER N.F.G." (NE)
SINCE JUNE 2003
PUNXSUTAWNEY CHRISTIAN SCHOOL (PCS)
GYMNASIUM
SINCE JUNE 2003
PUNXSUTAWNEY CHRISTIAN SCHOOL (PCS)
GYMNASIUM
216 NORTH JEFFERSON STREET
PUNXSUTAWNEY 15767
KIM (814) 938-2236
DAVE (814) 938-7378
START: 5:30 PM
PUNXSUTAWNEY 15767
KIM (814) 938-2236
DAVE (814) 938-7378
START: 5:30 PM
ADDITION 1/20
NARANON IN WESTERN PENNSYLVANIA
List of sites
ALANON
Support group for parents/loved ones of those affected by alcohol/substance abuse
Linda
Corsica Pa 15829
814-856-2972
ALANON
Dana
Dubois Pa 15801
814-371-7728
FROGS- FAMILIES REMOVING OBSTACLES & GAINING STRENGTH
Wendy
Welcome to anyone caring for a child with special needs of any type.. For more information call 814-375-9988 or email frogs7@verizon.net
ABOARD AUTISM SUPPORT GROUP
Kelly King
1186 Dickey Road
Reynoldsville Pa 15851
814-653-2671
ONLINE SUPPORT GROUP FOR AUTISM
OUR ADOPTION JOURNEY SUPPORT GROUP
Support for adoptive, foster, caregiver, grandparents
Karen Amrhein
108 Simpson Ave
Dubois Pa 15801
814-371-6951
RIGHT TO EDUCATION LOCAL TASK FORCE #6
PARENT ADVISORY COUNCIL
This group meets to address issues regarding students receiving special education services. Members include parents, school officials and community reps. Any parent welcome.Serves Clarion, Jefferson, Venango, Forest counties.
Gina Nicholson 814-427-2250
Gail Walker
Kacey Fischer 814-226-7103
INDIANA AREA BRAIN INJURY SUPPORT GROUP
Indiana Regional Medical Center
Private Dining Room #1
835 Hospital Drive
Indiana Pa 15701
Bill Compton 724-639-9416
3rd Thursday of month 7-9pm
Open discussion, occasional speakers
PA COUNCIL FOR EXCEPTIONAL CHILDREN
The principal purpose of the Assoc shall be to advance the education and welfare of children and youth with exceptionalities.
Contact:
Dreamalee Brotz
Plymouth-Whitemarsh HS
201 E. Germantown Pike
Plymouth Meeting Pa 19462
610-825-1500 Ext 2014
ABC EDUCATION ADVOCACY
Step-by-Step Parent Advocacy and Resources for families of children with special needs in Pa public Schools
Contact is Pam Cook
412-851-0252
MOMSTELL
Support/education/advocacy for parents of children involved with drugs
PO Box 450 Mechanicsburg, Pa 17055
717-730-2020
Sharon Smith
ACHIEVA
711 Bingham St
Pittsburgh Pa 15203
412-995-5000
1-888-272-7229
A member of The Partnership
Org for people with disabilities and their families, helps access support and services
REMEMBERING ADAM INC
Support and substance abuse prevention
Deborah Fowler
PO Box 665
Hastings Pa 16646
814-344-8026
1-877-767-ADAM
PRADER-WILLI SYNDROME ASSOCIATION OF PENNSYLVANIA
Support and advocacy for those afflicted with Prader-Willi Syndrome and their families and friends.
Debbie Fabio
President
104 Persimmon Place
Cranberry Township Pa 16066
724-779-4415
KIDS TOGETHER INC
PO Box 45
Quakertown Pa 18951
Volunteer non-profit provides info on inclusive communities, education/advocate listserve, email newsletter, website
PHONE CHANGE 1/26
THE SPECIAL KIDS NETWORK
Helps parents find resources for their special needs children and provide technical assistance to help groups develop, expand and maintain programs and support systems that serve children with special needs
1-877-986-4550
PARENT TO PARENT
Linking familes of children or adults with disabilities or special needs.
Network created by families for families of children and adults with special needs. We connect families in similar situations with one another so that they may share experiences, offer practical information and/or support.
1-888-727-2706
Parent to Parent of PA
SE Region
Philadelphia, Delaware, Chester, Lancaster, Montgomery, Berks, Bucks, Schuylkill
Cara Forrest- SE Regional Coordinator
1110 Enterprise Road
Suite A
East Petersburg, Pa 17520
1-888-727-2706
717-606-1298
\
NE Region
Lehigh, Northampton, Carbon, Monroe, Pike, Luzerne, Lackawanna, Wyoming, Wayne, Susquehanna
Regional Coordinator: Jody L. Miller
Parent to Parent of Pa
601 Park Street
Honesdale Pa 18431
570-251-3208
1-888-727-2706
Fax 570-253-8993
SC Region
York, Adams, Franklin, Fulton, Bedford, Lebanon, Dauphin, Cumberland, Perry, Huntingdon, Blair, Juniata, Mifflin
Regional Coordinator: Carmen Krawczak
Parent to Parent of Pa
6340 Flank Drive Suite 600
Harrisburg, Pa 17112
717-540-0263
1-888-727-2706
NC Region
Bradford, Sullivan, Columbia, Montour, Northumberland, Snyder, Union, Centre, Lycoming, Clinton, Tioga, Potter
Regional Coordinator: Melisa Hunter
Parent to Parent of Pa
2400 Reach Rd, PO Box 3609, Williamsport PA 17701
Office Ph: 570-321-8585
Office Fax: 570-323-1738
1-888-727-2706
SW Region
Somerset, Fayette, Greene, Washington, Westmoreland, Cambria, Indiana, Allegheny, Armstrong, Butler, Beaver
Regional Coordinator:Rachael Olbeter
Office Ph: 724-420-5035
Office Fax: 724-934-1344
1-888-727-2706
Regional Coordinator Nicole Zilli
Office Ph: 724-836-4409
NW Region
Clearfield, Jefferson, Clarion, Venango, Lawrence, Mercer, Forest, Elk, Cameron, McKean, Warren, Crawford, Erie
Region Coordinator: Lisa Kray
Parent to Parent of Pa
623 Elm Street
PO Box 276
Tionesta, Pa 16353
1-888-727-2706
814-755-7610
VALUE
Vision and Leadership Uniting Education
1624 Highpoint Road
Coopersburg Pa 18036
Coalition of Pa advocacy groups for children with special needs
THE MENTOR PARENT PROGRAM
Gail Walker
PO Box 47
Pittsfield Pa 16340
1-888-447-1431
814-563-3470
Program to provide support and services to parents of children with disabilities birth to age 26
PA TOURETTE SYNDROME ASSOCIATION
Sherrie Sponseller
132 West Midlle Street
Gettysburg Pa 17325
Advocates will do IEP for any child diagnosed with tourettes in any county in Pa . Education & Advocacy for individuals with Tourette Syndrome in the state of Pa..
1-800-990-3300
717-337-1134
WIC
WOMEN, INFANTS AND CHILDREN NUTRITION PROGRAM
Provides nutrition education, healthy foods, breastfeeding support and referrals to health and social service agencies.
Orgs. PLEASE NOTE; A CHILD WITH AN ACCESS CARD ( MEDICAL ASSISTANCE ) IS INCOME ELIGIBLE FOR WIC BENEFITS HOWEVER ALL PARTICIPANTS ARE REQUIRED TO PROVIDE THEIR HOUSEHOLD INCOME, REGARDLESS IF THEY HAVE MEDICAL ASSISTANCE OR NOT.
1-800-942-9467
ABOARD
Support for parents of children with autism/autism spectrum, website etc
Howard Carpenter
35 Wilson St
Suite 100
Pittsburgh Pa 15223
1-800-827-9385
EDUCATION LAW CENTER
Non-profit legal advocacy and educational organization dedicated to ensuring that all of Pennsylvania’s children have access to a quality public education
PHILADELPHIA CONTACTS
215-238-6970
WEBSITE- www.elc-pa.org
AUTISMLINK
Support, information etc
Online support groups and discussion boards.
376 Wagon Wheel Trail
Wexford Pa 15090
412-377-8778
PENNSYLVANIA HEALTH LAW PROJECT
Provides free legal services and advocacy to Pennsylvanians having trouble accessing publicly funded health care coverage or service.
CALL- 1-800-274-3258
1-866-236-6310 TTY
EMAIL - staff@phlp.org
1-888-890-5665
1-888-572-7368
717-561-0098
JOEY ONLINE SUPPORT GROUP
Just Open Everybody’s Eyes
Support for parents who have children with behavioral issues
GOVERNOR’S COMMISSION FOR CHILDREN AND FAMILIES
List of Health and Human Services
List of Advocacy Resources
Parent Guides
A website with information for parents and families.
MENTAL HEALTH ASSOCIATION IN PENNSYLVANIA
MHAPA works on behalf of mental health through advocacy, education and public policy.
Wendy Luckenbill, Family/Child Policy Coordinator
1-800-692-7443
PENNSYLVANIA SCHOOL-AGE CHILD CARE ALLIANCE- PENN SACCA
Group is committed to the expansion of high quality school-age care and after-school programs for children and youth. Membership is dedicated to the support of school-age professionals ands the development of quality school-age programs through advocacy and education.
Carolyn Hawk- 570-323-7134
Joyce Lang- 610-332-6541
PEAL CENTER
Pennsylvania’s Parents Training and Information Center serving Western and Central Pa. Organization provides disability info, info about special education process and parent’s rights, Parent Advixors are available to provide info and resources to assist the family with problem-solving strategies and direct them to other community resources ,trainings in Understanding IEP’s, IDEA’04, Building Continuity, etc
For information contact:
Parent Education and Advocacy Leadership Center
1119 Penn Avenue
Suite 400
Pittsburgh Pa 15222
412-422-1040
1-866-950-1040
PHONE CHANGE 1/26
PENNSYLVANIA CLIENT ASSISTANCE PROGRAM
CAP
Advocacy program helps people who are seeking services from the OVR, Blindness, Visual Services, Centers for Independent Living and other programs funded under federal law.
Provides you with info and advice about rehab programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehab programs,
There is no charge.
PHILADELPHIA OFFICE
215-557-7112
1-877-533-1593
HARRISBURG OFFICE
717-233-1593
STARFISH ADVOCACY ASSOCIATION
This is an Internet community for families of children with neurological disorders such as ADHD, bipolar disorder, Asperger’s, PDD, SID, learning disabilites, OCD, tourette syndrome, etc. Services include forum boards, interactive chat room, moderated chats, informational resources, online classes in educational advocacy, education consultations.
216-283-2377
Starfish Advocacy Assoc
3341 Warrensville Center Road
Suite 203
Shaker Heights, Ohio 44122
TEENCENTRAL.NET
TeenCentral.Net is a prevention and intervention resource for teens and is dedicated to improving the lives of all youth by providing emotional support and appropriate references in a safe Web environment where identity is protected and anonymity is respected.
BRAIN INJURY ASSOC OF PA
2400 Park Drive
Harrisburg Pa 17110
717-657-3601
866-635-7097
OFFICE OF VOCATIONAL REHABILITATION
OVR provides services to eligible persons with disabilites with the goal of getting or keeping competitive employment. You will be eligible for OVR services if: You have a disability that is physical, mental, or emotional impairment which results in a substantial impediment to employment, and you can benefit in terms of an employment outcome from services provided, and ,
Vocational Rehabilitation services are required for you to prepare for, enter, engage in or retain gainful employment. A Vocational Rehabilitation Counselor will determine eligibility.
OVR provides a wide range of services to eligible applicants. The individual being served and the vocational rehabilitation counselor develop an Individualized Employment Plan jointly. The services you receive will be arranged to meet your individual needs. Not everyone will need every service. OVR services include: diagnostic services, vocational evaluation, counseling, training, restoration services, placement assistance, assistive technology, and support services. There is no chanrge for diagnostic services, counseling and job placement. However, a customer maybe required sharing the cost of other services after a financial needs assessment is completed.
Additional information , including local OVR office locations can be found on www.dli.state.pa.us, click on disability services. Also find OVR offices across the state.
814-371-7340
1-800-922-4017
DISABILITY RIGHTS NETWORK
Disability Rights Network of Pennsylvania (DRN) is a statewide, non–profit corporation designated as the federally–mandated organization to advance and protect the civil rights of all adults and children with disabilities. DRN works with people with disabilities and their families to ensure their rights to live in their communities with the services they need, to receive a full and inclusive education, to live free of discrimination, abuse and neglect, and to have control and self–determination over their services.
General information /questions can be emailed to intake@drnpa.org where intake workers who are advocates and attorneys.
Harrisburg Office
1414 N. Cameron St., Suite C
Harrisburg, PA 17103
1-800-692-7443 [Voice]
1-877-375-7139 [TDD]
(717) 236-8110 [Voice]
(717) 346-0293 [TDD]
(717) 236-0192 [Fax]
(717) 236-0192 [Fax]
Philadelphia Office
The Philadelphia Building
1315 Walnut St., Suite 400
Philadelphia, PA 19107–4798
(215) 238-8070 (Voice)
(215) 789-2498 (TDD)
(215) 772-3126 (Fax)
Pittsburgh Office
429 4th Avenue, Suite 1901
Pittsburgh, PA 15219-1505
(412) 391-5225 [Voice]
(412) 467-8940 [TDD]
(412) 391-4496 [Fax]
drnpa-pgh@drnpa.org [Email]
Wexford Office
8500 Brooktree Road
Suite 100
Wexford, PA 15090
800-276-0928 [Voice]
724-934-1344 [Fax]
PA STATE FOSTER PARENT ASSOCIATION
We advocates for all those who care about children and their families. We work supportively with foster, adoptive, and kinship families, and with local foster parent associations and agencies who care for the children we serve. Psfpa.info@psfpa.com
800-951-5151
717-671-0102
ACQUIRED BRAIN INJURY NETWORK OF PA, INC.
Survivors and families facing the future with hope. Free newsletter, Infoline, brochures, staff, training
215-699-2139
ATTACHMENT DISORDERATTACh, the Association for Treatment and Training in the Attachment of Children, is an international coalition of professionals and families dedicated to helping those with attachment difficulties by sharing our knowledge, talents and resources.
PENNSYLVANIA HUMAN RIGHTS COMMISSION
Mission is to administer and enforce the PHRAct and the PFEOA of Pa for the identification and elimination of discrimination and providing of equal opportunity for all persons.
PITTSBURGH OFFICE
412-565-5395
HARRISBURG OFFICE
717-787-9784
PHILADELPHIA OFFICE
215-560-2496
ACCESS DOCTORS
Gives you the tools you need to create an accessible home or public building.
JOB ACCOMMODATION NETWORK
JAN helps you hire,retain,promote qualified employees/applicants with disabilities, provide accommodationoptions,etc
FETAL ALCOHOL SPECTRUM DISORDER CENTER FOR EXCELLENCE
Website provides info on FASD.
FASD is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These may include physical , mental, behavioral, and /or learning disabilities with possible lifelong implications.
CAFÉ MOM ONLINE GROUP
Online groups for parents and children who have many different special needs
SELECTIVE MUTISM SITES
Several sites below with info on selective mutism.
MENTORS FOR SELF DETERMINATION
Group of self advocates, family members and caregivers whose mission is to provide current and accurate information to people regarding the MR system in Pa. We offer statewide mentoring so people have a better understanding of the system, promote self determination by sharing life erperiences and networking with others. This is done in one session or group session called Family Connections.
Debbie Leasure
814.547.1577
dleasure@mentors4sd.org
www.mentors4sd.org
dleasure@mentors4sd.org
www.mentors4sd.org
ELKS HOME NURSE PROGRAM
Nurses serve as advocates to families with mentally or physically challenged children or adults. There is no age limit. Director Patricia O’Connor,RN
814-781-7860 pato@ncentral.com
Margie Wood Ass Director
724-225-1395 mwood15301@comcast.net
ONLINE CHAT SUPPORT GROUP
Group is for parents who are raising children with special needs.
WILLIAMSPORT LEARNING CENTER
2766 West College Avenue, Suite 2
State College, Pa 26802
814-234-2105
Marsha Landis, Director
Center for children with dyslexic/learning challenges.
ALTOONA LEARNING CENTER
Masonic Learning Centers for Children, Inc
1415 Eleventh Avenue
Altoona Pa 16601
814-940-5748
Patty Harrison, Director
Center for children with dyslexic/learning challenges.
YOUTH OUTREACH UNION
Meets at the Beehive
1327 East Carson St
Pittsburgh Pa 15203
Contact Mike Reber
YOU is a support and advocacy network of young adults for young adults. It’s members are either involved in a child serving system or they were. This support is peer driven and the group works to meet youth where they are to solve problems and deal wit issues that are important to them.
Website: www.youthoutreachunion.com
Mail address:
Youth Outreach Union
PO Box 97771
Pittsburgh Pa 15227
PENNSYLVANIA PARENTS OF BLIND CHILDREN
Supports parents of children with low vision, visual impairment and blilndness throughout Pa.
Contact Carlton Walker, President
213 North First St
McConnellsburg Pa 17233
717-485-3383
717-658-9894 c
SPINA BIFIDA ASSOCIATION
2950 Potshop Road
PO Box 859
Worcester, Pa 19490
800-223-0222
610-584-5530
Fax 215-412-9396
GENERATIONS UNITED SENIORS 4 KIDS
Civic engagement initiative that demonstrates the important role older adults can play in support of issues directly benefitting children and youth. We help adults age 50+create statewide networks of community leaders and grassroots volunteers that raise visibility of older adults in support of high-quality early care and education.
Anne Tria Wise
Intergenerational Engagement Manager
Generations United
1331 H St. NW Suite 900
Washington DC 20005
202-289-3979
PA OFFICE FOR THE DEAF & HARD OF HEARING
PA Office for the Deaf and Hard of Hearing phone: 717-783-4912 or 1-800-233-3008 e-mail ra-li-ovr-odhh@state.pa.us
THE PA PARTNERSHIP FOR THE BLIND
The PA Partnership for the Blind contact Gordon Boe at 215-699-6535 or g.boe@comcast.net
PA SOCIETY FOR THE ADVANCEMENT OF THE DEAF
Pa Society for the Advancement of the Deaf www.psadweb.org
ESPECIALLY FOR PARENTS
Especially for Parents is an online network and forum where parents of children and youth with special health care needs can share knowledge and offer support. Members are able to start a discussion, share tips, tricks and shortcuts, offer support to others, write a blog, create a group for parents with similar interests or situations, create a virtual meeting spot for a local community group, invite friends to become community members, and promote events. Visit us by going to www.pamedicalhome.org and clicking on the “Parents” button!
MARCH OF DIMES
160 S Progress Ave, Suite 1C
Harrisburg, Pa 17109
717-545-4534
Fax 717-545-5329
MARCH OF DIMES
1019 West 9th Ave
King of Prussia, Pa 19406
610-945-6050
Fax 610-945-6060
CRC OF PHILADELPHIA
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Bill Clemens
President
8049 Pine Road
Suite C11
Philadelphia Pa 19111
215-745-0594
CRC OF PITTSBURGH
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Michael Nieland M.D.
President
1400 Inverness Avenue
Pittsburgh Pa 15217
412-621-0222
NEW INFO 1/20
DIVORCE CARE FOR KIDS SUPPORT GROUPS
DC4K is a special group to help your children heal from the pain caused by a separation or divorce. DC4K provides your children with a safe and neutral place to recognize and learn to share their feelings.
For 13 weeks your church near you. The weekly session topics help your children learn that God’s love strengthens them and helps them turn their sadness to hope and their anger to joy.Each session is filled with motivating and exciting activities. Games, crafts, role playing, discussion times, journaling and activity books help your children process the divorce and move forward in their lives. The music CDs, snacks, read aloud stories, exercises and Bible verses teach your children to relax and rest secure in God’s love. The Kids Like Me and Stories from the Bible video dramas present stories of children just like your children, who are experiencing divorce-related problems and have found help and encouragement.
DC4K is a powerful ministry for kids 5–12 years of age.
NEW INFO 1/20
AMERICAN FOUNDATION FOR SUICIDE PREVENTION
AFSP-Pittsburgh
Ann M. Mitchell, Ph.D., R.N., F.A.A.N.
Associate Professor of Nursing and Psychiatry
University of Pittsburgh School of Nursing
3500 Victoria Street
415 Victoria Building
Pittsburgh, PA 15261
(412) 624-9005
fax: 412-383-7293
ammi@pitt.edu
AFSP-Pittsburgh
Ann M. Mitchell, Ph.D., R.N., F.A.A.N.
Associate Professor of Nursing and Psychiatry
University of Pittsburgh School of Nursing
3500 Victoria Street
415 Victoria Building
Pittsburgh, PA 15261
(412) 624-9005
fax: 412-383-7293
ammi@pitt.edu
PLEASE SEND INFO ON ANY OTHER GROUPS FOR PARENTS WHO HAVE CHILDREN WITH CHALLENGES SUCH AS :
MENTAL HEALTH, SOCIAL , EMOTIONAL
DEVELOPMENTAL DISABILITIES, AUTISM
LEARNING
DRUG AND ALCOHOL
SUICIDE
ADOPTION, FOSTER GROUPS ETC
SEND INFO TO :
1-800-947-4941
Please note we are also now listing groups for parents who have children with physical challenges as well.