ERIE

ERIE
Support groups/support for parents whose children have any kind of behavioral challenges, developmental, social or emotional concerns or addictions
 
 
PA FAMILIES INC
STATEWIDE FAMILY NETWORK
1-800-947-4941
pafamilies@comcast.net
 CALL OR EMAIL FOR CURRENT LIST
 
 
 
 
ERIE FAMILY CENTER
Colleen Masi – dir
913 Payne Avenue
Erie Pa 16503
814-874-6990
 
 
NAMI OF ERIE COUNTY
Support for parents/loved ones of those dealing with mental health issues
1611 Peach St
Suite 105
Erie Pa 16501
814-456-1773
WWW.NAMIERIE.ORG
info@namierie.org
 
 
PARENTS SHARING
Support for parents and a place to discuss the challenges of raising children
Meetings run by parents.
Meetings held at
Family Services, 5100 Peach St, Erie
6-7:30 Monday evenings
Rose Barr
3427 Allegheny Road
Erie Pa 16508
814-864-5621
UNION CITY FAMILY SUPPORT CENTER
38 North Main Street
Union City Pa 16438
814-438-7550
 
 
PENNSYLVANIA FAMILY SUPPORT ALLIANCE
Formerly parents anonymous
Ellen Martin
Union City Family Support Center
814-438-7550
 
 
KINSHIP CARE SUPPORT GROUP
Elsie Diduch
Union City Family Support Center
814-438-7550
 
 
TEEN SUPPORT GROUP
RAINBOWS
Jennifer Kram
Union City Family Support Center
814-438-7550
 
 
PARENT SUPPORT CENTER
Offers support, training, facilitator between parents and educators, information, “ listening ear” to parents of special need children
IU5 Erie Office
Michelle Kulesza
3814 Asbury Road
Erie Pa 16506
814-836-0870 x5258
 
NEW INFO 1/25
FOSTER PARENT ASSOCIATION
PSRFA Board Member
Edith Lawson
140 Raymond Ave
Corry Pa 16407
814-664-4541
 
ADVOCATE
Mental Health Association of Northwestern Pennsylvania
Linda Rainey, Child and Family Advocate
1101 Peach Street
Erie Pa 16501-1812
814-452-4462
814-474-5379
lrainey@mhanp.org
 
 
 
PARENT SUPPORT GROUP MEETING
Group is for parent or family member of a child receiving services in Erie County .Mental Health Assoc
1101 Peach St
Free parking south side of building
Linda Rainey 528-0619
Kathy Lutz 572-7653
 
 
DOWN SYNDROME GROUP OF ERIE COUNTY
PO Box 9426
Erie Pa 16506
Contact Jackie Lupo
814-833-2143
DownSynErie@yahoo.com
Or
Joyce Krahe McDonnell
Family Support Services
The Barber Institute
100 Barber Place
Erie Pa 16507
814-878-5905
 
 
 
 
 
 
 
 
MILLCREEK SCHOOL DISTRICT FAMILY SHARE & NETWORK GROUP
ADDITIONAL INFO 1/21
MILLCREEK SCHOOL DISTRICT Millcreeek Partners in Education
Parents and family members interested in networking, learning and sharing information with other parents in the Millcreek School District who have children with an IEP or 504 plan.
Contact is Linda Rose 814-838-0157 or
lrose@pealcenter.org
 
CONNECTIONS
Social skills development for 7-12 year-olds diagnosed with Asperger Syndrome or High Functioning Autism.
Nina Ferraro 814-453-7661
The Barber Institute
100 Barber Place
Erie Pa 16507
814-878-4048
 
 
21 + CLUB PARENTS SUPPORT GROUP
for parents w/kids over 21
Joyce Krahe McDonnell
The Barber Institute
Family Support Services
100 Barber Place
Erie Pa 16507
814-878-5905
 
 
PARENT VOLUNTEER PROGRAM
Family-to-Family telephone support
Joyce Krahe McDonnell
The Barber Institute
Family Support Services
100 Barber Place
Erie Pa 16507
814-878-5905
 
 
SIBS SESSION
Jennifer Dennehy
814-878-4117
The Barber Institute
Family Support Services
100 Barber Place
Erie Pa 16507
814-878-5936
 
 
 
ONLINE SUPPORT GROUP FOR AUTISM
http://groups.yahoo.com/group/children_with_autism/
 
CORRY SPECIAL KIDS SUPPORT GROUP
Support etc for parents of children with any special need
For more info
814-663-5023
afrodelius@yahoo.com
 
 
OBSCESSIVE COMPULSIVE DISORDER SUPPORT GROUP
FOR PARENTS AND KIDS
Kimberly Morrow
Community MH Center
Safe Harbor
1330 West 26th Street
Erie Pa 16508
814-838-9155
 
 
PAGE- Parents’ Adoption Group of Erie
Marguerite Szymanowski- contact
Family Services
5100 Peach St
Erie Pa 16509
814-866-4614
Parent leaders- Muriel Alexander Fausnaught fosterhomes4kids@aol.com
Ann Marie Hart – Ritzhart@cs.com
 
ERIE CHADD SUPPORT GROUP
Jaye K. Moelk
6350 Sterrettania Road
Fairview Pa 16415
814-833-1260
 
MENTAL HEALTH ASSOCIATION
Advocates/support
1101 Peach Street
Erie Pa 16501
814-452-446
 
GREATER ERIE AREA BRAIN INJURY SUPPORT GROUP
Parents/loved ones and survivors group
Jennifer Abbott
Healthsouth Erie Rehab Hosp.
143 East 2nd Street
Erie Pa 16507
814-878-1358
1-800-234-4574
 
.
ERIE AREA BRAIN INJURY PEER SUPPORT GROUP
Glenwood United Methodist Church
32nd Street and Zuck Road
Erie Pa 16506
Nicole Jezowicz 814-835-3082
Open forum, topics announced on meeting notices, no speakers
3rd Tuesday 5:15 - 6:30PM
Call Nanette Crawford at 814-452-5519.
 
 
PARENTS AS ADVOCATES
The Parents As Advocates meeting is held every second Tuesday from September through May.
Questions may be directed to Jodi Wilson @(814) 726-8406
 
 
 
 
 
NORTHWESTERN PENNSYLVANIA AUTISM SOCIETY OF AMERICA
Support group
Jan Formichella
PO Box 3923
Erie, Pa 16509
814-451-2550
OR
Jennifer Dennehy
The Barber Institute
Family Support Services
100 Barber Place
Erie Pa 16507
814-878-4117
 
 
RIGHT TO EDUCATION TASK FORCE #5
This group meets to address issues regarding students receiving special education services. Members include parents, school officials and community reps. Any parent welcome.Serves Erie Crawford, Warren Counties
Kathleen Lutz 814-454-7653
klselfadv76@gmail.com
Jodi Wilson 814-968-5204
wilsonj@wc-hs.org
Nina Wolfarth 814-453-7661
ninawolfarth@barberinstitute.org
 
 
ALANON
Support for parents/loved ones of those involved with alcohol
1-814-454-4730
 
 
ALANON
First United Methodist Church
42 East High Street
Union City Pa 16438
814-438-2113
 
 
LAKE ERIE SERENITY NAR-ANON MEETING LIST
Meetings for parents/friends/family of those using drugs. Meetings held at
First UMC- Lisa T 814-873-0872
 ST Vincent Beh Health Building - Jim B 814-392-9772
St Julia’s Church- Margo K- 814-454-6929
 St Vincent Health Center.
Patti G- 814-881-2645
 
 
NAR-ANON WESTERN REGION
List of all Nar-anon sites in western Pa.
www.geocities.com/naranon/pgh
Help line is 412-782-2210
 
ADDITION 1/21
NARANON
MONDAY - "YOUNG AT HEART" (N)
SINCE JUNE 2005
FIRST UNITED METHODIST CHURCH
REAR ENTRANCE
7TH AND SASSAFRAS STREETS
ERIE 16501
JIM (814) 392-9772
START: 7:30 PM
 
ADDITION 1/21
NARANON
TUESDAY - "RENEWED HOPES" (N)
SINCE MAY 2005
FAMILY WORSHIP CENTER
1201 PARADE STREET
(12TH AND PARADE)
ERIE 16502
PATTI (814) 881-2645 OR (814) 836-2925
START: 7:00 PM
 
 
ADDITION 1/21
NARANON
THURSDAY - "DAWN OF DISCOVERY" (N)
SINCE FEBRUARY 2006
ST. JULIA CATHOLIC CHURCH
PARKING LOT ENTRANCE
WEST 8TH AND POWELL AVENUE
ERIE 16505
MARGO (814) 454-6929
START: 7:30 PM
 
ADDITION 1/21
NARANON
FRIDAY - "OPEN ARMS" (N)
SINCE APRIL 2005
ST. VINCENT HEALTH CENTER
SPENCER CONFERENCE ROOM
232 WEST 25TH STREET
ERIE 16544
LISA (814) 454-4702 OR (814) 873-0872
START: 7:30 PM
 
ERIE COUNTY TRANSITION COUNCIL
They plan and facilitate successful transitions of students with disabilities from school to adult
Nancy Downey
Northwest IU5
252 Waterford Street
Edinboro Pa 16412
814-337-5918
Nancy_downey@iu5.org
 
LOCAL TRANSITION COORDINATING COUNCILS
They plan and facilitate successful transitions of students with disabilities from school to adult
Erie City Interagency Transition Council
148 West 21st
Erie Pa 16502
Kerry Demarco
dkemarco@eriesd.iu5.org
CHANGES 1/18
Mission Empower:
Educational Advocacy for the
Inclusion of Youth
Jill Hrinda-Patten,
Executive Director
4130 Neptune Drive, Erie, PA  16506
Phone: (814) 825-0788
E-mail: advocate@missionempower.org
Website: www.missionempower.org
Mission is to integrate all youth w/disabilities into their community through education, advocacy & empowerment.
 
ADDITION 1/26
MENTORING PROGRAM FOR YOUTH W/DISABILITIES
I CAN DO IT, YOU CAN DO IT!
Three sites, GROVE CITYYMCA,
BUTLER YMCA, Aebersold Recreation Center in SLIPPERY ROCK
Program matches an undergrad or grad student mentor w/youth. It is an 8 week program. For more info call:
Elizabeth Kemeny
Slippery Rock University
I CAN DO IT Coordinator
724-738-4306
 
 
 
 
 
 
 
 
 
 
 
 
PA COUNCIL FOR EXCEPTIONAL CHILDREN
www.pacec-sped.org
The principal purpose of the Assoc shall be to advance the education and welfare of children and youth with exceptionalities.
Contact:
Dreamalee Brotz
Plymouth-Whitemarsh HS
201 E. Germantown Pike
Plymouth Meeting Pa 19462
610-825-1500 Ext 2014
membership@pacec-sped.org
 
 
ABC EDUCATION ADVOCACY
www.ABCadvocacy.net
Step-by-Step Parent Advocacy and Resources for families of children with special needs in Pa public Schools
Contact is Pam Cook
412-851-0252
 
 
 
 
MOMSTELL
Support/education/advocacy for parents of children involved with drugs
PO Box 450 Mechanicsburg, Pa 17055
717-730-2020
Sharon Smith
www.momstell.com
momstell@verizon.net
 
ACHIEVA
Org for people with disabilities and their families, support/services
711 Bingham Street
Pittsburgh Pa 15203
contact@achieva.info
412-995-5000
1-888-272-7229
 
 
PRADER-WILLI SYNDROME ASSOCIATION OF PENNSYLVANIA
Support and advocacy for those afflicted with Prader-Willi Syndrome and their families and friends.
Debbie Fabio
President
104 Persimmon Place
Cranberry Township Pa 16066
724-779-4415
debpwsapa@yahoo.com
www.pwsausa.org
 
 
KIDS TOGETHER INC
PO Box 45
Quakertown Pa 18951
staff@kidstogether.org
www.kidstogether.org
Volunteer non-profit provides info on inclusive communities, education advocate listsserve, email newsletter, website
 
 
VALUE
Vision and leadership uniting education
Coalition of Pa. Advocacy groups for children with special needs.
colnchas@enter.net
Kids Together Inc
1624 Highpoint Road
Coopersburg Pa 18036
 
NEW PHONE 1/26
THE SPECIAL KIDS NETWORK
Helps parents find resources for their special needs children and provide technical assistance to help groups develop, expand and maintain programs and support systems that serve children with special needs
1-877-986-4550
WEBSITE
www.health.state.pa.us/skn
 
PARENT TO PARENT
Linking familes of children or adults with disabilities or special needs.
Network created by families for families of children and adults with special needs. We connect families in similar situations with one another so that they may share experiences, offer practical information and/or support.
1-888-727-2706
www.parenttoparent.org
 
Parent to Parent of PA
 
1-888-727-2706 will connect you with your nearest regional office.
Web: www.parenttoparent.org
 
SE Region
Philadelphia, Delaware, Chester, Lancaster, Montgomery, Berks, Bucks, Schuylkill
Cara Forrest- SE Regional Coordinator
1110 Enterprise Road
Suite A
East Petersburg, Pa 17520
1-888-727-2706
717-606-1298
seregion@parenttoparent.org
 
NE Region
Lehigh, Northampton, Carbon, Monroe, Pike, Luzerne, Lackawanna, Wyoming, Wayne, Susquehanna
 
Regional Coordinator: Jody L. Miller
Parent to Parent of Pa
601 Park Street
Honesdale Pa 18431
570-251-3208
1-888-727-2706
Fax 570-253-8993
neregion@parenttoparent.org
 
SC Region
York, Adams, Franklin, Fulton, Bedford, Lebanon, Dauphin, Cumberland, Perry, Huntingdon, Blair, Juniata, Mifflin
 
Regional Coordinator: Carmen Krawczak
Parent to Parent of Pa
6340 Flank Drive Suite 600
Harrisburg, Pa 17112
717-540-0263
1-888-727-2706
ckrawczak@parenttoparent.org
 
NC Region
Bradford, Sullivan, Columbia, Montour, Northumberland, Snyder, Union, Centre, Lycoming, Clinton, Tioga, Potter
 
 
Regional Coordinator: Melisa Hunter
Parent to Parent of Pa
2401 Reach Road, Ste 206.  Williamsport PA 17701
Office Ph: 570-321-8585
Office Fax: 570-323-1738
1-888-727-2706
ncregion@parenttoparent.org
 
SW Region
Somerset, Fayette, Greene, Washington, Westmoreland, Cambria, Indiana, Allegheny, Armstrong, Butler, Beaver
 
Regional Coordinator:Rachael Olbeter
Office Ph: 724-420-5035
Office Fax: 724-934-1344
1-888-727-2706
rolbeter@parenttoparent.org
 
Regional Coordinator Nicole Zilli
Office Ph: 724-836-4409
swregion@parenttoparent.org
 
 
NW Region
Clearfield, Jefferson, Clarion, Venango, Lawrence, Mercer, Forest, Elk, Cameron, McKean, Warren, Crawford, Erie
 
Region Coordinator: Lisa Kray
Parent to Parent of Pa
623 Elm Street
PO Box 276
Tionesta, Pa 16353
1-888-727-2706
814-755-7610
nwregion@parenttoparent.org
 
ADDITION 1/26/10
PA TOURETTE SYNDROME ALLIANCE, INC
 info@patsainc.org
1-800-990-3300
717-337-1134
www.patsainc.org
Provide Information and Support for those touched by Tourette Syndrome in the state of PA. 
Provide Consultants to assist parents and schools with educational plans.
Advocates will do IEP for any child diagnosed with tourettes in any county in Pa
Advocates will do IEP for any child diagnosed with tourettes in any county in Pa . Education & Advocacy for individuals with Tourette Syndrome in the state of Pa..
 
 
 
 
 
 
 
WIC
WOMEN, INFANTS AND CHILDREN NUTRITION PROGRAM
Provides nutrition education, healthy foods, breastfeeding support and referrals to health and social service agencies.
Orgs. PLEASE NOTE; A CHILD WITH AN ACCESS CARD ( MEDICAL ASSISTANCE ) IS INCOME ELIGIBLE FOR WIC BENEFITS HOWEVER ALL PARTICIPANTS ARE REQUIRED TO PROVIDE THEIR HOUSEHOLD INCOME, REGARDLESS IF THEY HAVE MEDICAL ASSISTANCE OR NOT.
1-800-942-9467
www.health.state.pa.us/familyhealth       www.pawic.com
 
 
ABOARD
Support for parents of children with autism/autism spectrum, website etc
Howard Carpenter
35 Wilson St
Suite 100
Pittsburgh Pa 15223
1-800-827-9385
info@aboard.org
www.aboard.org
 
 
AUTISMLINK
Support, information etc
Online support groups and discussion boards
376 Wagon Wheel Trail
Wexford Pa 15090
412-377-8778
info@autismlink.com
www.autismlink.com
 
 
 
 
EDUCATION LAW CENTER
Non-profit legal advocacy and educational organization dedicated to ensuring that all of Pennsylvania’s children have access to a quality public education
PHILADELPHIA CONTACTS
215-238-6970
elc@elc-pa.org
WEBSITE- www.elc-pa.org
 
PENNSYLVANIA HEALTH LAW PROJECT
Provides free legal services and advocacy to Pennsylvanians having trouble accessing publicly funded health care coverage or service.
CALL- 1-800-274-3258
1-866-236-6310 TTY
EMAIL - staff@phlp.org
www.phlp.org
1-888-890-5665
1-888-572-7368
717-561-0098
 
JOEY ONLINE SUPPORT GROUP
Just Open Everybody’s Eyes
Support for parents who have children with behavioral issues
gramaro@aol.com
 
 
GOVERNOR’S COMMISSION FOR CHILDREN AND FAMILIES
List of Health and Human Services
List of Advocacy Resources
Parent Guides
www.pachildren.state.pa.us
A website with information for parents and families.
 
 
 
 
 
 
PA STATE FOSTER PARENT ASSOCIATION
We advocates for all those who care about children and their families. We work supportively with foster, adoptive, and kinship families, and with local foster parent associations and agencies who care for the children we serve. Psfpa.info@psfpa.com
www.psfpa.com
800-951-5151
717-671-0102
 
PEAL CENTER
Pennsylvania’s Parents Training and Information Center serving Western and Central Pa. Organization provides disability info, info about special education process and parent’s rights, Parent Advixors are available to provide info and resources to assist the family with problem-solving strategies and direct them to other community resources ,trainings in Understanding IEP’s, IDEA’04, Building Continuity, etc
For information contact:
Parent Education and Advocacy Leadership Center
1119 Penn Avenue
Suite 400
Pittsburgh Pa 15222
412-422-1040
1-866-950-1040
acarter@pealcenter.org
 
 
 
 
 
 
 
 
 
 
 
 
NEW PHONE 1/26
PENNSYLVANIA CLIENT ASSISTANCE PROGRAM
CAP
Advocacy program helps people who are seeking services from the OVR, Blindness, Visual Services, Centers for Independent Living and other programs funded under federal law.
Provides you with info and advice about rehab programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehab programs,
There is no charge.
PHILADELPHIA OFFICE
215-557-7112
1-877-533-1593
HARRISBURG OFFICE
717-533-1593
info@equalemployment.org
 
STARFISH ADVOCACY ASSOCIATION
This is an Internet community for families of children with neurological disorders such as ADHD, bipolar disorder, Asperger’s, PDD, SID, learning disabilites, OCD, tourette syndrome, etc. Services include forum boards, interactive chat room, moderated chats, informational resources, online classes in educational advocacy, education consultations.
216-283-2377
www.starfishadvocacy.org
starfish@starfishadvocacy.org
Starfish Advocacy Assoc
3341 Warrensville Center Road
Suite 203
Shaker Heights, Ohio 44122
 
 
 
 
OFFICE OF VOCATIONAL REHABILITATION
OVR provides services to eligible persons with disabilites with the goal of getting or keeping competitive employment. You will be eligible for OVR services if: You have a disability that is physical, mental, or emotional impairment which results in a substantial impediment to employment, and you can benefit in terms of an employment outcome from services provided, and ,
Vocational Rehabilitation services are required for you to prepare for, enter, engage in or retain gainful employment. A Vocational Rehabilitation Counselor will determine eligibility.
OVR provides a wide range of services to eligible applicants. The individual being served and the vocational rehabilitation counselor develop an Individualized Employment Plan jointly. The services you receive will be arranged to meet your individual needs. Not everyone will need every service. OVR services include: diagnostic services, vocational evaluation, counseling, training, restoration services, placement assistance, assistive technology, and support services. There is no chanrge for diagnostic services, counseling and job placement. However, a customer maybe required sharing the cost of other services after a financial needs assessment is completed.
Additional information , including local OVR office locations can be found on www.dli.state.pa.us, click on disability services. Also find OVR offices across the state.
814-871-4551
1-800-541-0721
 
 
 
 
DISABILITY RIGHTS NETWORK
Disability Rights Network of Pennsylvania (DRN) is a statewide, non–profit corporation designated as the federally–mandated organization to advance and protect the civil rights of all adults and children with disabilities.  DRN works with people with disabilities and their families to ensure their rights to live in their communities with the services they need, to receive a full and inclusive education, to live free of discrimination, abuse and neglect, and to have control and self–determination over their services. 
General information /questions can be emailed to intake@drnpa.org where intake workers who are advocates and attorneys.
www.drnpa.org
 
Harrisburg Office
1414 N. Cameron St., Suite C
Harrisburg, PA 17103
drnpa-hbg@drnpa.org
1-800-692-7443 [Voice]
1-877-375-7139 [TDD]
(717) 236-8110 [Voice]
(717) 346-0293 [TDD]
(717) 236-0192 [Fax]
Philadelphia Office
The Philadelphia Building
1315 Walnut St., Suite 400
Philadelphia, PA 19107–4798
(215) 238-8070 (Voice)
(215) 789-2498 (TDD)
(215) 772-3126 (Fax)
drnpa-phila@drnpa.org
Pittsburgh Office
429 4th Avenue, Suite 1901
Pittsburgh, PA 15219-1505
(412) 391-5225 [Voice]
(412) 467-8940 [TDD]
(412) 391-4496 [Fax]
drnpa-pgh@drnpa.org [Email]
Wexford Office
8500 Brooktree Road
Suite 100
Wexford, PA 15090
800-276-0928 [Voice]
724-934-1344 [Fax
 
MENTAL HEALTH ASSOCIATION IN PENNSYLVANIA
MHAPA works on behalf of mental health through advocacy, education and public policy.
Wendy Luckenbill, Family/Child Policy Coordinator
1-800-692-7443
Wluckenbill@mhapa.org
www.mhapa.org
 
 
PENNSYLVANIA SCHOOL-AGE CHILD CARE ALLIANCE- PENN SACCA
Group is committed to the expansion of high quality school-age care and after-school programs for children and youth. Membership is dedicated to the support of school-age professionals ands the development of quality school-age programs through advocacy and education.
www.pennsacca.net
Carolyn Hawk- 570-323-7134
Joyce Lang- 610-332-6541
 
 
 
 
 
 
 
 
 
 
 
 
PENNSYLVANIA HUMAN RIGHTS COMMISSION
Mission is to administer and enforce the PHRAct and the PFEOA of Pa for the identification and elimination of discrimination and providing of equal opportunity for all persons.
PITTSBURGH OFFICE
412-565-5395
HARRISBURG OFFICE
717-787-9784
PHILADELPHIA OFFICE
215-560-2496
www.phrc.state.pa.us
 
ACCESS DOCTORS
Gives you the tools you need to create an accessible home or public building.
www.accessdoctors.atate.pa.us
 
 
 ACQUIRED BRAIN INJURY NETWORK OF PA, INC.
Survivors and families facing the future with hope. Free newsletter, Infoline, brochures, staff, training
215-699-2139
www.abin-pa.org
www.groups.yahoo.com/group/abin-pa
 
 
 
ATTACHMENT DISORDERATTACh, the Association for Treatment and Training in the Attachment of Children, is an international coalition of professionals and families dedicated to helping those with attachment difficulties by sharing our knowledge, talents and resources.
www.attach.org
 
 
 
 
 
 
 
TEENCENTRAL.NET
TeenCentral.Net is a prevention and intervention resource for teens and is dedicated to improving the lives of all youth by providing emotional support and appropriate references in a safe Web environment where identity is protected and anonymity is respected.
www.TeenCentral.Net
info@teencentral.net
 
 
BRAIN INJURY ASSOC OF PA
2400 Park Drive
Harrisburg Pa 17110
717-657-3601
866-635-7097
info@biapa.org
www.biapa.org
 
 
JOB ACCOMMODATION NETWORK
JAN helps you hire,retain,promote qualified employees/applicants with disabilities, provide accommodationoptions,etc
jan@jan.wvu.edu
www.jan.wvu.edu
 
 
FETAL ALCOHOL SPECTRUM DISORDER CENTER FOR EXCELLENCE
http://www.fascenter.samhsa.gov/
Website provides info on FASD.
FASD is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These may include physical , mental, behavioral, and /or learning disabilities with possible lifelong implications.
 
 
 
CAFÉ MOM
Online groups for parents and children who have many different special needs
http://www.cafemom.com/groups/find.php?keyword=special%20needs
 
 
SELECTIVE MUTISM SITES
Several sites below with info on selective mutism.
http://www.healthline.com/search?q1=selective+mutism&utm_source=no_health_channel&utm_medium=google&utm_campaign=serp&utm_term=selective%20mutism
 
http://www.selectivemutismfoundation.org/
 
http://www.selectivemutism.org/
 
 
ELKS HOME NURSE PROGRAM
Nurses serve as advocates to families with mentally or physically challenged children or adults. There is no age limit. Director Patricia O’Connor,RN
814-781-7860 pato@ncentral.com
Margie Wood Asst Director
724-225-1395 mwood15301@comcast.net
www.paelks.com/files/hsnurses.htm
 
ELK HOME NURSE
Marilyn Bennett, RN serves Erie and Warren County. She works out of Supportive Living Services in Erie.
Phone is 814-454-1252 x 281
 
ONLINE CHAT SUPPORT GROUP
Group is for parents who are raising children with special needs.
www.myadlcenter.org
dsoucy@myadlcenter.org
 
 
ERIE LEARNING CENTER
Masonic Learning Centers for Children, Inc
Po Box 9007
4701 Old Zuck Road
Erie Pa 16506
814-838-2405
Virginia L Miller, Director
Read4701@neohio.twcbc.com
www.childrenslearningcenters.org
Center for children with dyslexic/learning challenges.
 
 
CRC OF PITTSBURGH
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Michael Nieland M.D.
President
1400 Inverness Avenue
Pittsburgh Pa 15217
412-621-0222
 
MARCH OF DIMES
1407 Peninsula Drive
Erie Pa 16505
814-833-4941
Fax 814-835-3651
www.birthdefects.org
PA437@marchofdimes.com
 
 
 
 
 
 
 
 
 
 
YOUTH OUTREACH UNION
Meets at the Beehive
1327 East Carson St
Pittsburgh Pa 15203
Contact Mike Reber
michaelreber@youthoutreachunion.com
YOU is a support and advocacy network of young adults for young adults. It’s members are either involved in a child serving system or they were. This support is peer driven and the group works to meet youth where they are to solve problems and deal wit issues that are important to them.
Website: www.youthoutreachunion.com
Mail address:
Youth Outreach Union
PO Box 97771
Pittsburgh Pa 15227
 
 
PENNSYLVANIA PARENTS OF BLIND CHILDREN
Supports parents of children with low vision, visual impairment and blilndness throughout Pa.
Contact Carlton Walker, President
213 North First St
McConnellsburg Pa 17233
717-485-3383
717-658-9894 c
PaPoBC@gmail.com
carltonwalker@gmail.com
 
 
SPINA BIFIDA ASSOCIATION
2950 Potshop Road
PO Box 859
Worcester, Pa 19490
800-223-0222
610-584-5530
Fax 215-412-9396
info@sbadv.org
www.sbadv.org
 
 
GENERATIONS UNITED SENIORS 4 KIDS
Civic engagement initiative that demonstrates the important role older adults can play in support of issues directly benefitting children and youth. We help adults age 50+create statewide networks of community leaders and grassroots volunteers that raise visibility of older adults in support of high-quality early care and education.
Anne Tria Wise
Intergenerational Engagement Manager
Generations United
1331 H St. NW Suite 900
Washington DC 20005
202-289-3979
awise@gu.org
www.gu.org
www.seniors4kids.org
 
 
PA OFFICE FOR THE DEAF & HARD OF HEARING
PA Office for the Deaf and Hard of Hearing  phone: 717-783-4912 or 1-800-233-3008 e-mail ra-li-ovr-odhh@state.pa.us 
 
THE PA PARTNERSHIP FOR THE BLIND
The PA Partnership for the Blind contact Gordon Boe at 215-699-6535 or g.boe@comcast.net
 
 
PA SOCIETY FOR THE ADVANCEMENT OF THE DEAF
Pa Society for the Advancement of the Deaf  www.psadweb.org 
 
 
 
 
 
 
 
 
 
 
ESPECIALLY FOR PARENTS ONLINE SUPPORT NETWORK AND FORUM
Especially for Parents is an online network and forum where parents of children and youth with special health care needs can share knowledge and offer support.  Members are able to start a discussion, share tips, tricks and shortcuts, offer support to others, write a blog, create a group for parents with similar interests or situations, create a virtual meeting spot for a local community group, invite friends to become community members, and promote events. Visit us by going to www.pamedicalhome.org and clicking on the “Parents” button!
 
 
DISPUTE RESOLUTION, OFFICE FOR & SPECIAL ED CONSULTLINE
6340 Flank Drive, Suite 600
Harrisburg Pa 17112
800-992-4334 or 717-541-4960
Special ed communication & conflict resolution. Call for help with school, IEP conflicts. Manual available.
This Manual is under revision in light of regulatory changes.  For inquiries regarding parent rights and procedural safeguards, please contact the Special Education ConsultLine at 1-800-879-2301.  For questions regarding due process, please contact Lori Shafer, Case Manager, at 1-800-222-3353, Ext. 3319.  For questions regarding Mediation, please contact Judy Shanabrough, Case Manager, at 1-800-222-3353, Ext. 3301.
www.odr.pattan.net
CONSULTINE- 1-800-879-2301
 
 
 
ACTIVE MINDS SUPPORT AT COLLEGE
Active Minds is only org. working to utilize the student voice regarding mental health.By developing and supporting chapters of a student-run mh health awareness, education & advocacy group on camput, org works to provide info and resources etc. They encourage students to seek help asap and serve as liason between students and the mh community.
· Bryn Mawr College (Bryn Mawr, PA)
· Bucknell University (Lewisburg, PA)
· Cabrini College (Radnor, PA)
· Dickinson College (Carlisle, PA)
· Drexel University (Philadelphia, PA)
· Gettysburg College (Gettysburg, PA)
· Immaculata University (Immaculata, PA)
· Indiana University of Pennsylvania (Indiana, PA)
· Juniata College (Huntingdon, PA)
· Lafayette College (Easton, PA)
· Mercyhurst College (Erie, PA)
· Miscericordia University (Dallas, PA)
· Montgomery County Community College (Blue Bell, PA)
· Moravian College (Bethlehem, PA)
· Muhlenberg College (Allentown, PA)
· Philadelphia University (Philadelphia, PA)
· University of Pennsylvania (Philadelphia, PA) (founding chapter)
· University of Pittsburgh (Pittsburgh, PA)
· University of Pittsburgh at Bradford (Bradford, PA)
· Ursinus College (Collegeville, PA)
· West Chester University (West Chester, PA)
· Amy Tannenbaum, Chapters Coordinator: amy@activeminds.org (eastern US)
· General Information: info@activeminds.org
www.activeminds.org
 
DIVORCE CARE FOR KIDS SUPPORT GROUPS
DC4K is a special group to help your children heal from the pain caused by a separation or divorce. DC4K provides your children with a safe and neutral place to recognize and learn to share their feelings.
For 13 weeks your children become involved in a fun, caring group at a church near you. The weekly session topics help your children learn that God’s love strengthens them and helps them turn their sadness to hope and their anger to joy.Each session is filled with motivating and exciting activities. Games, crafts, role playing, discussion times, journaling and activity books help your children process the divorce and move forward in their lives. The music CDs, snacks, read aloud stories, exercises and Bible verses teach your children to relax and rest secure in God’s love. The Kids Like Me and Stories from the Bible video dramas present stories of children just like your children, who are experiencing divorce-related problems and have found help and encouragement.
DC4K is a powerful ministry for kids 5–12 years of age.
www.dc4k.org/about/
 
 
 
ADDITION 1/21
AMERICAN FOUNDATION FOR SUICIDE PREVENTION
AFSP-Pittsburgh

Ann M. Mitchell, Ph.D., R.N., F.A.A.N.
Associate Professor of Nursing and Psychiatry
University of Pittsburgh School of Nursing
3500 Victoria Street
415 Victoria Building
Pittsburgh, PA 15261
(412) 624-9005
fax: 412-383-7293

ammi@pitt.edu
 
ADDITION 1/21
NAR-ANON FAMILY GROUP HEADQUARTERS INC. (WSO)
22527 CRENSHAW BOULEVARD, SUITE 200B
TORRANCE, CALIFORNIA 90505
TOLL FREE: 1 800 477 6291
PHONE: (310) 534-8188
FAX: (310) 534-8688
E-MAIL: naranonwso@gmail.com
On-Line Forum: www.naranon.com/forum
www.naranon.com
 
 
 
 
PLEASE SEND INFO ON ANY OTHER GROUPS FOR PARENTS WHO HAVE CHILDREN WITH CHALLENGES SUCH AS :
MENTAL HEALTH, SOCIAL , EMOTIONAL
DEVELOPMENTAL DISABILITIES, AUTISM
LEARNING
DRUG AND ALCOHOL
SUICIDE
ADOPTION, FOSTER GROUPS ETC
SEND INFO TO :
1-800-947-4941
pafamilies@comcast.net
Please note we are also now listing groups for parents who have children with physical challenges as well.